There has been a Down Syndrome Group in Solihull since 1990, which was run through the national Down’s Syndrome Association in London. Solihull Down Syndrome Support Group (Postitive About Down Syndrome) Charity then started in May 2002 - set up by a team of local parents of children with Down Syndrome. The Group is affiliated to the Down’s Syndrome Association in London.

A celebration evening was held to launch the group, with Joanne Malin from BBC Local News officially naming the group. Lee Carsley who has played for Everton & Birmingham City Football Clubs and is now at Coventry FC became our Patron at that time and continues to fulfill this key role for the Group. The present Board members all started in 2002 and between them have a wealth of knowledge and experience to share with the wider group.

The Group provides support from birth to 19yrs and has grown significantly over the years to now include 65 families from Solihull and its surrounding areas. We aim to support the whole family, in a variety of ways which may include advice on form filling (e.g. DLA, Carers Allowance), transition into adulthood, activities for our children, speech and language therapy and family fun days out.

What we do

We aim to support children and young people with Down Syndrome and their families in providing the opportunity to make contact with other people in a similar situation. The support offered to families and the sharing of solutions to problems experienced by many families can help ease the feelings of isolation when they have a child with Down Syndrome.